Strap in for another long one. I recently read a book about how to eat better, clean up your diet and improve your brain health by doing so. In the book, the author fell from a tower in 2011. He was 27 years old at the time. He hit his head and he went into a coma. He was given less than a ten percent chance of ever even waking up again.
However, he did wake up. He ended up with many of the tbi (traumatic brain injury) symptoms that I have. Though his were much more severe. He ended up putting himself on a very restrictive (and in my opinion) unenjoyable diet. He eats no meat (other than fish), no milk or dairy products, no, wheat, no gluten, no trans fat and he tries to avoid all artificial sugar, additives, hormones or chemicals. He buys only organic food. He eats nothing ultra processed and tries to limit his sodium and cholesterol intake.
He claims to have cleared up his brain fog and restored his full cognitive abilities. I am fully onboard with limiting my artificial sugars, additives, hormones and ultra processed foods. Additionally, I want to limit my sodium and cholesterol intake. I am just trying to be generally healthier with my diet and exercise routine, not do anything extreme in order to try and live forever.
However, I know that I will never be able to eliminate milk, wheat, dairy and gluten from my diet totally. Life for me would be totally unenjoyable if I was to force myself to such a restrictive diet. Even if it was helpful to my cognitive abilities. I prefer to struggle along as I am, trying to be generally healthy but not go overboard with such a restrictive diet. Because I don't see the value of extending your life if you don't truly enjoy it. However, I am glad that his methods have worked well for him and that he has been able to spread his message through his book.
Now on to the reason why I was inspired to write this blog post. The author of the book, gave thanks to himself for his recovery. Some people may consider that selfish, I however do not. I was motivated to do the same thing.
It has been a long, slow, hard recovery for me. I am six years into this journey now. However, I am still far from being fully recovered. I am slowly but surely getting back to normal life though. I have survived 12 brain surgeries and one failed eye surgery to correct my twisted left pupil. I have been dealing with limited mobility, stability, balance issues and speech issues at the same time. I have said this before but I would not wish this on my worst enemy. However, I am grateful for the privilege of being alive and generally being able to do what I want. I am not paralyzed thank God, bedridden or in a coma. I have an amazing support system of family and friends who are always with me.
I have gotten down to skin and bones, back when I was on the pureed food diet. I ended up losing a huge amount of weight. I have been hospitalized for over 9 months (cumulatively). I have spent so much boring time immobilized in a hospital bed, patiently waiting for my body to recover. For the longest time, I just let my body recover slowly and naturally. It always managed to do it luckily.
For better or worse, I did not push myself at all until recently. As the old saying goes, you cannot change the past, only the future. I most likely could have done things differently, better and more efficiently. However, that is neither here nor there. I have had to relearn how to walk, talk and do basic things in life that you learn as a toddler. However, you have to play with the cards that you are dealt in the hard of life. Sometimes, you are dealt a lousy hand.
No amount of self pity will change that fact though. I went through a period of clinical depression. Luckily, with the help of my family, friends, my general doctor and an antidepressant, I made it through to the other side. I have mentioned this before but when I was depressed, I lost all of my motivation. I only opened my eyes because it was an automatic reflex from my body. Nothing made me feel emotional in any way. While luckily I never considered ending my own life (mostly because it would take me more effort than I was willing to expend to do so). I got to the point where I didn't care if I lived or I died.
Even when I was taken off of my antidepressant and I was no longer clinically depressed, I still was not really motivated to improve. Because I was not motivated to improve, I saw no improvement. Because I saw no improvement, I was not motivated to do anything. I was convinced that my recovery window was closed and that I would never get any better. It was a big, negative vicious cycle that I was caught in.
One of the reasons why I was so unmotivated (though not the sole reason) was I naturally had lower levels of dopamine in my brain. Dopamine is the chemical in your brain that gives you motivation, reward, drive and happiness. I had lower levels of dopamine in my brain due to going through my depression and my brain naturally produced less dopamine when I was in the midst of my recovery (even though I am still recovering).
I have always hated exercising. For 41 years of my life, I would treat it an obligation that I would force myself to do. I would be initially very motivated. However, by a couple of weeks or months into it, I would lose my desire and quit. I would start off by missing one day of exercise. Then, one day would become two days and I would become discouraged and just give up. For the first time in my entire life, I feel like this time things are going to be different though.
Both my parents and Jenny are extremely skeptical about me changing a 41 year pattern of behavior. Rightfully so. I don't blame them at all. Right now, here in Texas, my parents make it easy on me. They don't do any of the actual exercises for me, but they do drive me to and from the gym, six days a week. Initially, until I started seeing real progress, they had to force me to do my daily exercise routine. Luckily, they didn't give up on my progress as quickly as I was ready to. Had I stuck to my usual pattern, I would have given up long before I saw any real progress. I have come to learn throughout this health journey that I must have patience and be persistent with my mind and my body.
I was trying to do a balance exercise where you stand up straight unassisted. You then put your feet very close together. At that point, you then close your eyes and touch your nose with one finger. It is not easy to do. I tried to do it daily for 29 days in a row. Every day I would try and every day I would fail. It was extremely difficult mentally, to not give up on it because I would know with certainy that I would fail. I began to think, what is the point? However, for the first time in my entire life, I was able to stick with it. After 29 days of failing every day, then I was able to do it successfully. My persistence paid off. My mind and body learned how to work together on something after 29 days of repetition. Had I fallen into my usual pattern of behavior, I would have given up long before I could do it successfully. I am proud of myself that I did not. Anything that I want to do physically, that is realistic (not like climbing Mount Everest) I can do, with a mixture of time, patience and perseverance.
Both Jenny and my parents are rightfully skeptical about my ability to self motivate and maintain my exercise routine once I get back home to Pamplona Spain. After all, I am trying to change a 41 year old pattern of behavior. However, this time I am confident that I will be able to do it. Because I know that I have one shot at this and if I fall into the trap of my old behavior, then not only will I be disappointing myself but I will have lost the trust that both Jenny and my parents are bestowing in me. If I fail they won't ever be able to trust that I will follow through with any long term commitments anymore. I realize how high the stakes are here. I can't fail, I won't fail. This will be extremely difficult for me not only because I am trying to change a 41 year old pattern of behavior but because I know that this won't be a commitment to exercising for a few weeks or months. It's a commitment for the rest of my natural life. I will do it though. Even though it won't be easy and I can't afford to fail. Because nothing truly worth it is ever easy. It will be hard, but not impossible. I have learned that there is a big difference between the two.
I recently watched a video on YouTube presented by a German doctor (it was in English). She went on to explain that most people treat exercise as an obligation that you must force yourself to do. They end up getting lazy and giving up after a few weeks or months. That is something that I am extremely familiar with.
However, she went on to say that we should stop treating exercise as an obligation and something that we hate. We should be thinking about it as preventive maintenance and controlled stress on our bodies, through the increase in your breathing, blood pressure and heart rate (among other things). It will protect us against dementia and keep us generally healthier for longer. I really liked her explanation. I am going to work on changing my mindset towards exercising.
Daily vigerous exercise also releases a chemical in the brain (in addition to dopamine) which the scientific community has nicknamed fertilizer for your brain. You don't have this chemical released until or unless you break a sweat and get your heart rate up. So, gentle stretching, while it may be good for your flexibility, it will not release this chemical.
When this chemical gets released, it helps release dopamine, it reduces your stress levels, improves your cardiovascular systems and the best news for me personally, it helps repair and reconnect damaged neural networks between your brain and your body. This is all great news for me and yet another reason why unlike most of you, physical exercise isn't optional for me but it is something that I must continue to do throughout the remainder of my (hopefully) long life that I have left.
I wanted to quickly mention what happens to me when I don't exercise vigorously for a few days in a row. I feel sluggish, like my brain is not connecting with my body. It will issue commands to my body which then get totally ignored, acted on too slowly or acted on in the wrong way. This is extremely frustrating for me. As much as I dislike all of this exercise, it is worth it to do it for the general health benefits and to keep my brain healthy and connected to my body.
It was not until I came back home to Texas in January of this year that I was able to break out of my cycle of negativity and increase my dopamine naturally through exercise and taking a daily shower with an ice cold blast of water for the last minute. At first, I didn't see any improvement so I just assumed that this trip and all of the exercises I was being forced to do (at first my parents had to force me to exercise). Were a waste of time and money. However, luckily I was proven to be very wrong.
After six years of inactivity my brain slowly began to wake up. It was successfully communicating with my body (although not 100 % of the time). I remember the first time it happened to me that my brain successfully communicated with my body, I cried like a baby. I had assumed that it would never work again but it did. Prior to all of this repetitive exercise (and still occasionally) my brain would issue a command to my body and my body would either ignore it completely, respond very slowly or respond in the wrong way. It is very frustrating.
I have been through six years of physical, occupational and speech therapy. My goal has been to relearn the basic skills like walking and talking normally again. Basic life skills that I did easily and automatically prior to all of this. I have learned that walking and talking normally, easily and au are miracles and they should be treated as such. I no longer take them for granted.
Once I connected the dots between my daily exercise, cold blast in the shower and increased dopamine, I started to actually not dread working out or treating it as an obligation. I still don't enjoy exercising. However, I have come to the realization that for me (unlike most of you) exercise is not optional for me. I must do it, not only for my general health and to protect against dementia but to keep my brain active and connecting with my body. This won't be just a temporary commitment for me, but something that I will have to continue for the rest of my life. Although, I currently exercise six days a week, taking only Sunday off as a rest day. In the future, I may be able to work out intensely only Monday to Friday. However, I won't taper off until I am confident that my brain won't go dormant again.
Finally, I want to take this opportunity to sincerely apologize to everyone who loves and supports me. Most especially, my wife, daughter and my parents and all of Jenny's family as well. My lack of dopamine absolutely contributed to my stagnation as I previously mentioned. However, I can't blame my lack of progress, 100% on my lack of dopamine. I need to take some of the blame. For that, I am truly sorry. However, I am grateful that I recognized the problem, found a solution (doing my exercise). I will continue working hard to make sure that it never happens ever again.
I also want to take this opportunity to single out Jenny's family for praise. I am not related to them by blood, but they have accepted me and treat me like their own son. I am so very grateful for my two sisters in laws, my in-laws and my brother in law. I can't forget about Ana's boyfriend Fran either. All of these health issues have not affected only me. They have also affected everyone around me. I am so very lucky to have their unwavering support and help. They do things like ferry me to and from the doctor. They also take care of Eliana Valentina. My in-laws never complain. They are always willing to be an extra pair of hands, at the drop of a hat. Prior to us moving to Pamplona, I was initially hesitant to move so close to them. However, looking back on it six years later, I am so very grateful for the help always. I am truly extremely fortunate to have Jenny's family to support me when my own family is so far away.
I have previously written a separate blog post all about the pons (Portable neuromodulation stimulator device) for balance, mobility and stability recovery. Please read that if you want more details. However, I now have the device in my possession. I just need to go get it programmed and let me receive the in person training on using it. I am trying not to get my hopes up but if it works out for me it will be pretty miraculous to be able to walk again totally unassisted after having limited mobility for six years. Fingers crossed for me. However, even if it only improves my mobility by ten percent, then it will have been worth the time, money and effort.
So, long story short, thank you to myself. I am a strong person both physically and mentally (even though my wife Jenny is the strongest person whom I know) putting up with all of my health issues and raising our daughter basically alone when I was too sick to do anything. I am forever grateful for her never ending love and support. She has never given up on me, even when I gave up on myself.
Now that I am finally stable health wise, I can no longer continue to rely on Jenny to be both mom and dad. It is hard for me with my limited mobility to actively participate in my daughter's life. However, hard does not mean impossible. Both Jenny and Eliana Valentina deserve my best efforts to step up and reclaim my rightful position as a husband and a father. The closer that I can get to returning to normal life, the easier it will be on both of them (and everyone else who supports me). I am realizing all of this now. Six years after all of this started for me. As the old saying goes, it's better late than never. I have made some mistakes in the past. I wasted a lot of my time, effort, my wife's patience and my parents money. However, I am actively trying to make sure that the future is different from my past.
Everyone around me all deserve my best efforts. If no one else around me has given up on me, I can't be the one who gives up first. Everyone around me who loves and supports me deserves a special shout out too. This has been a long, hard, slow journey that has affected not only me but everyone around me. Most especially my parents, my wife and daughter Eliana Valentina, all of Jenny's family and my extended family and friends. I couldn't possibly do this without their never ending support. Thank you for letting me say everything that I wanted to say.
Til next time, Tyler