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Sunday, June 22, 2025

Thankful

I know that I have said this before but it bears repeating. I don't have an ideal health condition, I am more dependant on Jenny and Eliana than I want to be. I would not wish my current health condition on my worst enemy. However I have come a long way in the past five years. My condition could be much worse. I still have a decent quality of life and I hope it only improves.

Thank you to Jenny and Eliana for putting up with me. Thank you to my parents for always helping me out even in the hard times. Thank you to all of my extended family and friends for their unending support. 

I never asked for nor expected this. However, I am dealing with it the best way that I can. I hope that I don't have to go back to the hospital and that I will continue to recover. I will continue trying to motivate myself to get better physically and mentally. I am hopeful that I will be able to start working again soon and will be be able to financially take care of my family. I am tired of being a burden to Jenny and her family. 

Well this is all for now. Til next time, Tyler 

Thursday, June 12, 2025

June Health Update

Well now that I am back home from my recent hospitalization I figured it was high time to update everyone on my health situation.

Back in March right before our cruise, my parents, Jenny, Eliana and I got sick. However, I got the worst of it (along with my dad unfortunately). I was never tested but we are assuming that I got covid.

I had fever, chills, runny nose, sore throat, headache, congestion and coughing. I was miserable during the cruise and I was barely able to leave my room. It was unfortunate. After about ten days I started to feel better though. 

Unfortunately, whatever sickness that I had caused my symptoms to get worse. My facial paralysis got worse, my left eye stopped closing and my walking gait and general stability got worse. 

I went to the hospital here in Pamplona and they admitted me for a week of testing and observation. They did blood work, urine sample, xrays, CT scan, MRI and they even checked my eyes. Everything is fine for now with my shunts. 

I didn't lose any weight in the hospital. I was able to continue eating and drinking normally. Other than being extremely bored and getting no solid answers I was glad to get home in just a week. At least they were being cautious. 

After a week, they released me to go back home with an 8 day course of anti inflammatory steroids (which is what they would have given me, had I tested positive for covid). I am frustrated not to have a solid answer but I am happy not to have to have another surgery or extended hospital stay.

The doctors took out my IV after two days and they nener put me in a hospital gown. 
We will keep my in person appointment for November with my neurosurgeon in Barcelona who did my surgeries. I do not feel amazing nor terrible. I am holding steady. Hopefully, everything continues to work. I have one more consult pending with the neuro eye doctor. I plan to ask him if straightening my left eye will improve my balance or not. If it will be only cosmetic I won't bother with another surgery. However if it will actually help, I will do it once they finally authorize it. 

Well that is all for now. Til next time, Tyler