The mouthpiece has a maximum lifespan of fourteen weeks (if your prescribed treatment last longer than that, you need to buy a new $750 mouthpiece. However, the company that makes and sells the pons device doesn't currently have a TBI (traumatic brain injury) protocol. So, they are classifying me as a stroke victim (even though I never had one).
What this means, is my treatment protocol will be decreased from fourteen weeks to just twelve. At first, I was disappointed understanding that I would have two weeks less time with the device. However, in doing my own research I have come to find out that in twelve weeks of treatment, the studies have shown that you can achieve the full potential benefits of using the pons.
In fact, I have read about people who slack off on their treatment, knowing that they have fourteen weeks versus twelve weeks, they act do themselves a disservice by not giving it their full efforts.
So, I am going to continue trying my hardest until November 20th. I have already noticed small improvements in my balance and stability. For example, prior to using the pons device, because of my brain damage, there was significant delay between my brain issuing a movement command and me actually moving.
The pons device has cut down on that hesitation significantly. Additionally, prior to using the pons device, the precision of my feet was not good. Frequently, my feet would go to the left or right side of where I wanted. The pons device has made me feel much more precise. I am hopeful that all of this time, effort and expense will be worth it in the end.
Til next time, Tyler
Every small improvement is actually huge, in the grand scheme of things. Excited for you. Love, mom
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