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Tuesday, September 08, 2026

My Pons Training Schedule

I recently wrote a blog post all about receiving my Pons device (Portable neuromodulation stimulator device) if you want more details about it, please read that blog post. In a nutshell, I am hoping to trick my brain into restoring my full mobility, stability and balance using electrical stimulation of my tounge directly to my vestibular system (balance system) which is your eyes, inner ears and brain. I am very hopeful that it will work for me after my fourteen weeks of daily exercise (except for a rest day on Sunday). 

The exercise program is demanding. I am the first person in the entire state of Texas to receive and use the pons device. I must workout five times a day minimum, broken down into twenty minute sessions. You can complete the exercise program alone, using no equipment. However, to get the maximum benefit of using the device, you ideally should have access to a treadmill, parallel bars for balance exercises and an elliptical machine (along with anything else that might help with balance recovery).

I have not been able to get to a gym as of yet here in Spain. However, on Monday, I will be going to my local gym (it is next to Eliana Valentina'school). To register and start working out at a fully equipped gym with the pons device.

There is no guarantee that this will restore my mobility. It will be a long, hard, demanding time of daily exercise for 100 minutes daily, si days a week. However, it will be worth all the time, money and effort if it actually restores me to full mobility again after six years of living with limited mobility. My speech is still an issue (although recently it has improved drastically). However, limited mobility is my biggest hurdle in regaining my independence, and by extension my wife and daughter Eliana Valentina regaining their independence (and everyone else who supports me).

I have said this many times before, I wouldn't wish this to happen to my worst enemy. However, I wouldn't change anything even if I could because I have learned so much from this long journey of six years and counting. I am truly grateful for every day that I have above ground. I am so lucky to have the love and support of my family and friends. I am not paralyzed thank God, nor am I in a coma. There are so many other people so much worse off than me. 

People who have degenerative conditions which they can do nothing about. The only thing that they can do is to hopefully slow down the progression of their disease. I am so lucky to have the ability to afford the pons device and the ability to move my body and hopefully I will fully recover with time and effort. It will not be easy but it will absolutely be worth it.

Thank you for everything. Til next time, Tyler 

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