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Friday, June 14, 2024

My Health - Looking into the future

I wanted to give you a more detailed health outlook for the future. My progress has been small but it is slow and steady. I know that this is a marathon not a sprint. However, even if I am like this for five years total, in my entire lifespan, five years is just the blink of an eye.

I hope that I will have many more years happy years left with my family and friends. Everyone has been so supportive and helpful to me. I am truly a lucky guy. 

The most frustrating thing about living with my condition is losing my independence and the ability to walk and talk correctly. I used to take those things for granted. However, I do not anymore! Walking and talking are a miracle. Most people are lucky to do it without thinking about it.

My brain is healing faster than my body is. So sometimes my brain will send a command to my body, like move your left leg. Then my body will just ignore it and not respond. It is very frustrating. I am relatively young still, mentally but physically, I am trapped in an old man's body. 

Having to use thickener with my liquids is annoying but not the end of the world. Luckily, I can eat any solid food that I want. After being on a liquid diet when I was in the hospital, was terrible and I lost a lot of weight. So I consider myself lucky now. 

My short term memory has been affected by all of the anesthesia that I had. So now I write down everything in my phone so I don't forget. But again, this is more annoying than the end of the world. 

I always used to have bad handwriting but it was legible. Now after all of this, my handwriting is not legible. So I prefer to use the computer or my phone so you can read it. 

I used to have shakes and tremors a lot due to my weak muscle tone and my head and neck swayed like I was on a cruise ship constantly. However, since I have been going to physical therapy four times a week, all of that has mostly disappeared. 

My left eye went crooked due to the increased brain pressure and my vision deteriorated but I have worn glasses since I was 12. I can no longer wear contacts but I don't mind really. At least I am not blind or paralyzed, even if I do have bad balance and rely on a wheelchair or walker to get around. 

The only operation that I have left to go through is one to straighten my crooked left eye. It will only fix it cosmetically, it won't improve my vision but at least it will look normal again. 

I am lucky to know that I will only continue to improve my life slowly but surely and eventually I will get back to normal life again. I am a lucky guy and I am lucky to know that my condition will only continue to improve with time and effort and not get progressively worse. 

My situation sounds terrible but, Jenny and Eliana have both been extremely helpful and supportive even though they never asked for this situation. 

Jenny 's family has also been amazing as have my friends and family. I am a lucky man and blessed to be alive and relatively normal despite my health issues.

The last thing that I want to mention is my current work situation. Obviously, I can no longer teach English due to my limited mobility and speech issues. Unfortunately, I didn't work enough years back home to qualify for social security and I would have to work 20 more years here in Spain to qualify for a pension. So I am between a rock and a hard place.

I am now looking for a job that I can do from home that doesn't require me to talk on the phone. It has not been easy to find something so far but I won't give up. I would be willing to get a job outside of the house if it is a good fit. However, working from home would be more isolating, but easier for me. 

I feel bad for Jenny because right now she is the only one who is working and I want to take some stress off her shoulders and contribute financially again. 

That is all in a nutshell, Tyler 


  1. We're proud of your drive and commitment, and admire your outlook on life.

  2. You are now, and have always been, a miracle. So proud of the work you’ve done and the optimism you show through all the drawbacks. Love you so much. Aunt Pam